SCARSDALE, N.Y.--(BUSINESS WIRE)--On February 29, 2024, International Rare Disease Day, U.S. Congressman Josh Gottheimer (NJ-5), a dedicated member of the Rare Disease Caucus, took a significant step ...

Bipartisan resolution introduced to the House on International Rare Disease Day is a significant step to advocate for much needed funding for CMT research. Recognizing the significance of ...

MEBANE, N.C. — When most 9-year-olds run outside to play, Marley Lang has to approach it differently. “I can walk and run, but not normally,” Marley said. Marley lives with Charcot-Marie-Tooth Disease ...

Hi, my name is Alyccia and I am writing this letter in the hope of creating a better awareness of Charcot Marie Tooth disease. Charcot Marie Tooth disease is better known as CMT and it affects one in ...

A celebrated national spokesperson can be one of the most powerful tools available when it comes to increasing awareness for a disease. Think of Michael J. Fox’s work for Parkinson’s disease, Jada ...

JACKSONVILLE, Fla — A Jacksonville man is using his feet to end a rare, incurable disease that he lives with. Tim Nightingale is leading the “CMTA Jacksonville Walk 4 CMT” at the Jacksonville Mayo ...

Toby Keith's family is continuing to honor his legacy. Two months after the country music star died at age 62, his children Krystal Keith, Shelley Covel Rowland and Stelen Keith Covel attended the ...